I saw my hairdresser today and told them about my diagnosis. More hugs and support. I received a neat quote vial e-mail from my sister Charlotte; "Nobody can go back and start a new beginning, but anyone can start today and make a new ending." - Maria Robinson
Another person posted for me to check out www.myeloma.org which I did. One of my colleagues will be bringing me his copy of Lance Armstrong's book. I have my reading list started.
I went to the oncologist to get a new Thalidomide prescription because of problems getting the drug in this area. I turned it in to my local (chain) drugstore and hopefully, they will get it by Thursday. Let's get this party started. It'll be the only cocktail I'll be having for quite some time. :(
I went to work and received supportive news on my job position during my illness. I actually started working for a while and ended up putting in four hours. I saw HR and they are on the case now.
I told a couple more friends and, though it's bad news, I have support and prayers from that many more people.
I received some great e-mail messages, one from my sister-in-law, Debbie and a follow up message from my Niece, Heather. They are both riot's. I look forward to more of their fun messages and demented disease humor.
Tuesday, November 28, 2006
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2 comments:
Been there done that...... A popular saying but in this case it is accurate. I am also a myeloma patient. Currently on Thalomide and cumidin (warfarin). I have been through all the chemo ect...The treatments led up to two stem cell transplants, which put me in remission for a while. Having someone to help you during this is important. Let the pharmacy know a week in advance that you are going to run out of your thal..... This gives them time to reorder. It is better not to interupt the meds. I would be more than happy to answer any question you might have. Here is my e-mail address jojamaan@aol.com. I will check in to see your post. Stay strong and keep informed on what research is showing. You are in charge and will need to make the decisions.
I think you need ot post what Heather and Debbie sent
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